Know Your Coordinator, Know Your Status
by Angela Bogetti-Dumlao, R.N., FNP and Patrice Chamberlain
Stay Abreast of Your Pre-Transplant Status and Next Steps
For individuals awaiting a kidney transplant from a deceased donor, knowing your transplant status is a top priority. California Pacific’s Kidney Transplant Program now makes this easier, as we have reorganized our pre-transplant team to have one nurse dedicated to each of three pre-transplant status designations. These San Francisco-based nurses work closely with our outreach nurse coordinators, located in regions throughout Northern California.
If you are awaiting a kidney transplant at California Pacific Medical Center, you need to know your transplant status, the pre-transplant nurse who oversees that status, and your local outreach nurse coordinator.“You hear the quote all the time that it takes a village; it really does take a village to get someone transplant ready,” says Nurse Coordinator Lana Souza, R.N. Pre-transplant patients awaiting a deceased donor transplant are assigned one of three statuses:
Pre- listed Patients
Pre- listed patients are those who have been evaluated but not added to the transplant waiting list. Reasons for this may include:
- Kidney function/glomerular filtration rate (GFR)does not meet the United Network for Organ Sharing (UNOS) requirement of < 20 for listing
- Overweight, with Body Mass Index (BMI) >40
- Psychosocial issues such as legal restraints, substance abuse, inadequate support, noncompliance
- Incomplete or missing lab information, such as not having two reports that confirm a patient's blood type
- Complete required lab work and/or tests as soon as possible
- If you have questions contact your pre- listed coordinator, Lana Souza, at 415-600-1088 or your local outreach nurse coordinator
- Keep your outreach nurse coordinator regularly apprised of your GFR and BMI
- Maintain contact with your transplant social worker to complete any relevant psychosocial requirements
Status 7 Patients
Status 7 patients are those who have been added to the transplant waiting list but have not been cleared for transplant due to medical, financial or psychosocial issues. Because there is currently a long wait for deceased donor, the Status 7 Nurse Coordinator, Marilou Rodas, R.N., closely monitors the list to estimate when an individual’s work-up should be completed. She will then contact the transplant candidate to schedule a re-evaluation. A re-evaluation helps ensure transplant candidacy, and physical and psychological readiness.
Steps a Status 7 patient can take to progress to the next stage on the list include:
- Stay healthy—keep dialysis appointments and practice health maintenance. This includes wellness screenings, dental exams, regular exercise and weight control. If you are a smoker, you will have to quit smoking before you can receive a transplant.
- Complete appropriate testing in a timely manner
- Keep your nurse coordinator apprised of any medical, psychosocial and insurance changes
- Have all appropriate tests results sent directly to California Pacific's Kidney Team via mail or fax: 415-600-1085
Status 1 Patients
A Status 1 patient is medically, psychosocially and financially cleared for transplant. These individuals could receive a call for a kidney at any time. Individuals are notified by letter when they become Status 1.
The Status 1 Nurse Coordinator, Vicki Martin, R.N., works with Status 1 patients to ensure readiness when a kidney becomes available. A re-evaluation appointment may be necessary at Status 1. As one’s health changes, the Kidney Team may periodically request tests to ensure that one is an acceptable transplant candidate. Because the Kidney Team has one hour to contact you if a kidney becomes available, it is critical that you stay in touch with your coordinator, providing updates to your health status, insurance or contact information.
Awaiting Kidney Transplant?
|Pre-Transplant||Pre- listed Patients||Lana Souza, RN||415-600-1088|
|Pre-Transplant||Status 7 Patients||Marilou Rodas, RN||415-600-1082|
|Pre-Transplant||Status 1 Patients||Vicki Martin, RN||415-600-1079|
|Living Donor||Living Donor Transplants|
(recipient last names A-K)
|Donyale John, RN||415-600-1718|
|Living Donor||Living Donor Transplants |
(recipient last names L-Z)
|Lana Jaber, RN||415-600-5973|
|Outreach||East Bay Area Patients||Clarissa Golden, RN||510-776-4143|
|Outreach||Fresno Area Patients||Lisa Lynn, LCSW, ACSW||559-681-0829|
|Outreach||Modesto Area Patients||Robert Fuller, RN||209-401-8996|
|Outreach||North Coast & San Francisco Area Patients||Susan Reid, RN||415-912-8845|
|Outreach||Sacramento / Nevada Area Patients||Sharon Deane, RN||916-768-2795|
|Outreach||South Bay Area Patients||Betsy Bucter, RN||408-832-5495|
article from Fall Winter 2010 Kidney Review newsletter